2. Stakeholders
Direct & Indirect Stakeholders
Stakeholders encompass individuals, groups, or organisations engaged throughout the entirety of the Personal Encyclopedia's process. They can be categorized into two groups: Direct and Indirect. Direct stakeholders engage in immediate interaction with the NAO, while indirect stakeholders are ancillary or secondary participants in the process.
Who are the system's direct stakeholders?
- PwD: Person with early-stage dementia.
- Guardian(s): Direct relative(s) who help with the set-up of the NAO.
- Programmers and designers of the NAO.
Who are the system's indirect stakeholders?
- Indirect stakeholders include further friends and family who get feedback about the cognitive state and affect state of the PwD through the system.
- Other PwD who have interacted with the system, whose use provides feedback for further development.
- Researchers affiliated with the study of dementia and related conditions.
Values
To ensure that values are carefully considered throughout the entire process, we have examined the expectations of the stakeholders and will utilise them to steer the process.
PwD value privacy of their personal data:
The confidentiality of PwD data is crucial. This encompasses all personal information retained within NAO, the history of individual interactions, and any camera and microphone footage. This information will be stored online to ensure accessibility for direct stakeholders, regardless of their location, and enable them to contribute to the database. Prior to the NAO's launch, methods such as encryption will be thoroughly explored to guarantee the protection of all data.
Programmers and designers value PwDs' emotions:
NAO needs to effectively assess how its interactions evoke particular emotions and maintain the ability to sustain a healthy, natural, and ethical conversation. As outlined in the section Situated Activities, the implementation of NAO will focus on establishing a secure environment and leveraging all available knowledge to prevent socially inappropriate situations.
Direct relatives value the NAO's capabilities to assist PwD for a better quality of life:
The goal is to avoid total dependence on NAO and ensure that during the initial three phases (Set-up, Accustoming, and Operational), the PwD does not become dependent. To safeguard against this, the fourth phase has been devised to expand NAO's capabilities. For instance, NAO will be capable of quizzing the PwD rather than solely receiving questions. In this manner, we can mitigate any potential adverse effects of utilising this system.
Programmers and designers value PwDs' trust in the NAO:
For direct stakeholders, including PwD and their relatives, programmers and designers must ensure the NAO operates effectively and positively impacts the PwD. Aligning with the previously mentioned values, the combination of functionality and value is essential to cultivate a successful system, thereby developing a level of reliability and trust among all direct and indirect stakeholders.