Changes for page 1. Socio-Cognitive Support for PwD

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1		-//background//
	1	+**First sketch**
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3		-A person with dementia, further called the subject in accordance with our ontology, generally forgets information about their relatives and other close persons in their environment. It has been reported that a subject can feel anxious when querying their relatives for information and have a sense of overreliance on those around them (1)(2) .
	3	+People with dementia have reported to feel dependent on the people in their surroundings. This is expressed through the repetitive need to ask for information about relatives after memories have faded. Overreliance on relatives can lead to the person with dementia feeling like a burden. This can in turn lead to separation from relatives and loneliness.
	4	+According to the self-determination theory a person needs autonomy and connectedness (and competence) in order to "foster the most volitional and high quality forms of motivation and engagement for activities, including enhanced performance, persistence, and creativity." ([[https:~~/~~/selfdeterminationtheory.org/theory/>>https://selfdeterminationtheory.org/theory/]]). This means, in order to motivate the pwd to participate in the usual activities of their 'pre-dementia' lives, and to engage with their relatives, we must promote these three factors.
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5		-(1) [[https:~~/~~/karger.com/dem/article/42/5-6/342/98881/The-Experience-of-Relations-in-Persons-with>>https://karger.com/dem/article/42/5-6/342/98881/The-Experience-of-Relations-in-Persons-with]]
	6	+Important values in this case can be derived from the Basic Human Values (schwartz), and include achievement and security.
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7		-(2) "Some people with dementia desired to maintain positive meaningful relationships by receiving support and love from their family, and by being respected for their remaining abilities, their autonomy, and their continued usefulness" Perspectives of People with Dementia About Meaningful Activities: A Synthesis
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9		-The subject expresses this reliance through the repetitive need need to ask for information about others in their environment. This burden, as perceived by the subject themselves, can lead to feelings of disconnectedness, separation, and loneliness.
10		-According to the self-determination theory a subject benefits from autonomy, connectedness, and competence in order to improve their motivation for engagement with activities (3). (4) expanded on the connectedness and determined that connectedness is to self, to others, and the environment is important for participating in activities. In others words, in order for the subject to actively maintain relationships and engage with their relatives through social contact, the three named factors must be stimulated.
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12		-(3) //Ryan, R. M., & Deci, E. L. (2000). Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. American psychologist, 55(1), 68.//
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14		-(4) Areum Han, Jeff Radel, Joan M. McDowd, Dory Sabata (2016). Perspectives of People with Dementia
15		-About Meaningful Activities: A Synthesis
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18		-//task at hand and related values//
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20		-The task that a human is trying to accomplish is the task of remembering their relatives well enough to decrease the dependence on those relatives. The values related to this can be found in Schwartz. These values include Self-direction, in the sense that it gives them more freedom, but also security, in the sense that they still recognize and belong to the social order they are used to.
21		-We can support this task by creating a personal encyclopedia in which all the information of family members. The person can then consult this encyclopedia verbally. Because the cognition of a pwd depends highly on the stage of the dementia (//Week 3.1b -PwDcognitonMusic_Schaefer2023, slide 4//), a solution like this might only be useful in early stage dementia.
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23		-This can help because "Knowledge can be created when persons actively interact by knowledge exchange, sharing experiences, and taking asymmetric" (Vygotsky). So when reminded by the robot of the relative's information, the pwd will remember it better and be less reliant on their relatives.
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25		-It is important to consider the balance between important truthful information and upsetting information; Too much (irrelevant) information might upset the pwd. Supported by the Zones of Proximal Development (source?), a person has a range in which content difficulty and skill level have the right proportions to learn. Extending this to dementia patients: The information difficulty and the dementia progression are symmetrically (negatively) correlated.
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28	28	**Questions to answer here: **
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30	30	* " What tasks and/or values is the human trying to accomplish and how can the technology support the human in doing so? "- xwiki