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Last modified by William OGrady on 2024/04/08 16:30
From version 7.4
edited by Rixt Hellinga
on 2024/02/29 11:28
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To version 6.3
edited by Rixt Hellinga
on 2024/02/29 09:12
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1 -**First sketch**
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3 -People with dementia have reported to feel dependent on the people in their surroundings. This is expressed through the repetitive need to ask for information about relatives after memories have faded. Overreliance on relatives can lead to the person with dementia feeling like a burden. This can in turn lead to separation from relatives and loneliness.
4 -According to the self-determination theory a person needs autonomy and connectedness (and competence) in order to "foster the most volitional and high quality forms of motivation and engagement for activities, including enhanced performance, persistence, and creativity." ([[https:~~/~~/selfdeterminationtheory.org/theory/>>https://selfdeterminationtheory.org/theory/]]). This means, in order to motivate the pwd to participate in the usual activities of their 'pre-dementia' lives, and to engage with their relatives, we must promote these three factors.
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6 -The task that a human is trying to accomplish is the task of remembering their relatives well enough to decrease the dependence on those relatives. The values related to this can be found in Schwartz. These values include Self-direction, in the sense that it gives them more freedom, but also security, in the sense that they still recognize and belong to the social order they are used to.
7 -We can support this task by creating a personal encyclopedia in which all the information of family members. The person can then consult this encyclopedia verbally.
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11 11  **Questions to answer here: **
12 12  
13 13  * " What tasks and/or values is the human trying to accomplish and how can the technology support the human in doing so? "- xwiki
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16 16  
17 17  **Short Answer:**
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19 -With dementia is has been reported that the subject feels like they're a burden on their loved ones. When they constantly have to ask for information they feel dependent. This isolates them and makes them feel lonely. We can help this in the early stages of dementia by providing a personal encyclopedia.
9 +With dementia is has been reported that the subject feels like they're a burden on their loved ones. When they constantly have to ask for information they feel + add asource
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22 22  **Useful theories/design patterns:**
23 23  
24 24  * We have to make sure to define 'early' stage well.
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27 27  //Basic Human Values Schwartz, S. H. (2012). An overview of the Schwartz theory of basic values. Online readings in Psychology and Culture, 2(1), 11.//
28 28  * Autonomy is part of the self-determination theory. And also connectedness (and part of connectedness is to not feel alone, which is also relevant for us).
29 29  //Ryan, R. M., & Deci, E. L. (2000). Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. American psychologist, 55(1), 68.//
30 -* Knowledge can be created when persons actively interact by knowledge exchange, sharing experiences, and taking asymmetric (e.g., teaching / learning) roles Rooted in// Vygotsky’s (1896–1934) theory (“an inherent social nature of learning”)//
21 +* Knowledge can be created when persons actively interact by knowledge exchange, sharing experiences, and taking asymmetric (e.g., teaching / learning) roles Rooted in// Vygotsky’s (1896–1934) theory (“an inherent social nature of learning”)//
31 31  * Educator's role is to give children experiences that are within their //Zones of Proximal Development ZPD//, thereby advancing their individual learning (this relates to our issue of truth vs upsetting the patient)
32 32  
33 33  [[image:1709192513768-157.png||height="185" width="197"]]
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35 35  
36 -**Other possibly useful resources:**
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38 -* Areum Han, Jeff Radel, Joan M. McDowd, Dory Sabata (2016). Perspectives of People with Dementia
39 -About Meaningful Activities: A Synthesis
40 -* Lazar, A., Thompson, H., & Demiris, G. (2014). A systematic review of the use of technology for reminiscence therapy. //Health education & behavior//, //41//(1_suppl), 51S-61S.
41 -* Wilson, R. S., Wang, T., Yu, L., Grodstein, F., Bennett, D. A., & Boyle, P. A. (2021). Cognitive activity and onset age of incident alzheimer disease dementia. Neurology, 97(9).
42 -* Chaturvedi, R., Verma, S., Das, R., & Dwivedi, Y. K. (2023). Social companionship with artificial intelligence: recent trends and future avenues. Technological Forecasting and Social Change, 193, 122634.
43 -* E. Grandmaison and M. Simard, “A Critical Review of Memory Stimulation Programs in Alzheimer’s Disease,” //The Journal of Neuropsychiatry and Clinical Neurosciences//, vol. 15, no. 2, pp. 130–144, May 2003
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