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Last modified by William OGrady on 2024/04/08 16:30
From version 18.1
edited by Jean-Paul Smit
on 2024/03/25 15:18
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To version 20.1
edited by William OGrady
on 2024/04/06 11:14
Change comment: There is no comment for this version

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1 -== **//Background//** ==
1 +== Background ==
2 2  
3 -A person with dementia, further called the PwD in our ontology, generally forgets information about their relatives and other close persons in their environment. It has been reported that a PwD can feel anxious when querying their relatives for information and have a sense of overreliance on those around them [1][2].
3 +A person with dementia, further called the PwD in our [[ontology>>https://xwiki.ewi.tudelft.nl/xwiki/wiki/sce2024group01/view/Ontologies/Personal%20Encyclopedia%20Ontology/]], generally forgets information about their relatives and other close persons in their environment. It has been reported that a PwD can feel anxious when querying their relatives for information and have a sense of overreliance on those around them [1][2].
4 4  
5 5  The PwD expresses this reliance through the repetitive need to ask for information about others in their environment. This burden, as perceived by the PwD themselves, can lead to feelings of disconnectedness, separation, and loneliness.
6 6  According to the self-determination theory, a PwD benefits from autonomy, connectedness, and competence to improve their motivation for engagement with activities [3]. Han et al. [4] expanded on connectedness and determined that connectedness is to self, to others, and the environment is important for participating in activities. For the PwD to actively maintain relationships and engage with their relatives through social contact, the three named factors must be stimulated.
7 7  
8 -== **//Socio-Cognitive Support//** ==
8 +== Socio-Cognitive Support ==
9 9  
10 10  The task of increasing autonomy in a PwD can consist of remembering information about relatives without having to prompt the relatives in question. According to Vygotsky [6] interacting with another entity through knowledge exchange contributes to knowledge creation. So to realize this task we develop the NAO with the functionality of a personal encyclopedia, containing information on relatives and other loved ones. The PwD is then able to consult this encyclopedia verbally.
11 11  This solution requires at least some retention of information. As the cognition of the PwD depends on the progression of the dementia [5], it will be limited to those with early-stage dementia.
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16 16  The Zone of Proximal Development defines a ratio between skill level and content difficulty in which a child can learn from information. The closely related Scaffolding Theory underlines the importance of proper assistance for a novice in achieving some goal. Although both theories are usually called upon in the context of children's development, they certainly have some relevance in memory regression. From both theories, we learn that it is important to not only support the PwD in their goal to maintain memories about loved ones, but to also do it at an appropriate pace to avoid confusion and the negative emotions that come with that.
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18 18  
19 += References =
19 19  
20 -
21 -= **//References//** =
22 -
23 23  [1] Eriksen S, Helvik AS, Juvet LK, Skovdahl K, Førsund LH, Grov EK. The Experience of Relations in Persons with Dementia: A Systematic Meta-Synthesis. Dement Geriatr Cogn Disord. 2016;42(5-6):342-368. doi: 10.1159/000452404. Epub 2016 Nov 19. PMID: 27866199.
24 24  
25 25  [2] Han A, Radel J, McDowd JM, Sabata D. Perspectives of People with Dementia About Meaningful Activities: A Synthesis. Am J Alzheimers Dis Other Demen. 2016 Mar;31(2):115-23. doi: 10.1177/1533317515598857. PMID: 26340962.