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edited by Doreen Mulder
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1 -XWiki.DoreenMulder
1 +XWiki.Tim_Huisman2
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5 5  People with dementia face challenges that were not present in their life before being affected by their condition. This is also influenced by their living situation, since they may live in care homes or dementia centers. To ensure that people with dementia stay safe, activities are usually lead by a caretaker. However, staff has limited time available to spend with each individual person. Group activities or caretaker-lead activities may affect the feeling of autonomy of the person with dementia. Autonomy is one of the key psychological needs described in self-determination theory, which describes how feeling fulfilled is influenced by how much a person feels in control of their own actions. It is important to the mental well-being of people with dementia to keep a sense of autonomy.
6 6  With our research, we aim to provide support to Patients with Dementia (PwD) who currently are dependent on their caretakers and significant other to go for walks. This is outlined in more detail in the Objectives section. The presumed baseline is that PwD walk under supervision of their loved ones or caretakers. To reach our objective and support our claims, we would like to put forward the following research question:
7 7  
8 -//Does walking with the MiRo increase the perceived autonomy of people with dementia, compared to walking under guidance of a caretaker?//
8 +//Does walking with WAF increase the perceived autonomy of people with dementia, compared to walking under guidance of a caretaker?//
9 9  
10 10  To answer this question, we use the following subquestions:
11 11  
12 -* Is the MiRo effective in providing guidance to a person with dementia on a predetermined route?
12 +* Is WAF effective in providing guidance to a person with dementia on a predetermined route?
13 13  * Does the increase in perceived autonomy outweigh the possible delayed help when a person with dementia gets in trouble on their walk?
14 14  
15 15  = Method =
16 16  
17 -To this effect, we would like to invite users to participate in a usability study. In the study, we will assess our research question by dividing the participants into two groups: one with a //caretaker// and one with a //MiRo//. The former group will enact the activity of walking in the current setting and the latter group will do the equivalent with the robot. Afterwards, both groups are assessed by means of Likert-scales to measure the increase. The difference in scores between the caretaker and the MiRo (WAF) setting will then be subjected to a Wilcoxon [[(Conover, 1998, p. 250)>>https://www-wiley-com.tudelft.idm.oclc.org/en-nl/Practical+Nonparametric+Statistics%2C+3rd+Edition-p-9780471160687]] test to determine whether the increase is statistically significant. If the significance has been demonstrated, then we can reject the null hypothesis: walking with the MiRo will not provide an increased feeling of autonomy compared to walking with a caretaker.
17 +To this effect, we would like to invite users to participate in a usability study. In the study, we will assess our research question by dividing the participants into two groups: one with a //caretaker// and one with //WAF//. The former group will enact the activity of walking in the current setting and the latter group will do the equivalent with the robot. Afterwards, both groups are assessed by means of Likert-scales to measure the increase. The difference in scores between the caretaker and the WAF setting will then be subjected to a Wilcoxon [[(Conover, 1998, p. 250)>>https://www-wiley-com.tudelft.idm.oclc.org/en-nl/Practical+Nonparametric+Statistics%2C+3rd+Edition-p-9780471160687]] test to determine whether the increase is statistically significant. If the significance has been demonstrated, then we can reject the null hypothesis: walking with the WAF will not provide an increased feeling of autonomy compared to walking with a caretaker.
18 18  
19 19  
20 20  == Participants ==
21 21  
22 -For our study, we would have liked to invite people with dementia to participate. However, user testing with a vulnerable group as this one is difficult seeing the current circumstances with the COVID-19 pandemic.
23 -For this reason, we decided to design an experiment to be conducted on our fellow students. Students will be briefed on dementia. Then they take on the role of one of the personas, and roleplay a person with dementia. Through this roleplay, we aim to simulate a study with people with dementia as accurately as possible in the given situation. We will give them one page of the [[persona handout document>>https://xwiki.ewi.tudelft.nl/xwiki/wiki/sce2022group02/download/Test/WebHome/personas-handouts.pdf?rev=1.1]]
22 +For our study, we would have liked to invite people with dementia to participate. However, user testing with a vulnerable group such as this one is difficult seeing the current circumstances of the COVID-19 pandemic.
23 +For this reason, we decided to design an experiment to be conducted on our fellow students. Students will be briefed on dementia. Then they take on the role of one of the personas and roleplay a person with dementia. Through this roleplay, we aim to simulate a study with people with dementia as accurately as possible in the given situation. We will give them one page of the [[persona handout document>>https://xwiki.ewi.tudelft.nl/xwiki/wiki/sce2022group02/download/Test/WebHome/personas-handouts.pdf?rev=1.1]]
24 24  
25 25  == Experimental design ==
26 26  
27 -The main research question can be answered using a within-subject design in order to be able to measure the //increase// per subject. The learning effect will be mitigated, because the two juxtaposed settings are vastly different. So, there is no advantage for the participant to be subjected to two conditions serially. In addition to the questionnaire, notes will be taken during the experiment of the observations of the participant's interactions with WAF (Walking Assisting Friend).
27 +The main research question can be answered using a within-subject design in order to be able to measure the //increase// per subject. The learning effect will be mitigated because the two juxtaposed settings are vastly different. So, there is no advantage for the participant to be subjected to two conditions serially. In addition to the questionnaire, notes will be taken during the experiment of the observations of the participant's interactions with WAF.
28 28  
29 29  == Ethical Approval ==
30 30  
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36 36  
37 37  * Walking a route
38 38  * Wandering off during a walk
39 -* Falling and alerting a caretaker
40 40  
41 41  Walking a route
42 -The person with dementia will walk a route guided by either a caretaker or by the MiRo.
41 +The person with dementia will walk a route guided by either a caretaker or by WAF.
43 43  
44 44  Wandering off during a walk
45 -A person with dementia may become lost in their current surroundings. They might wander off from the predetermined route. Depending on the study group, either the caretaker or the MiRo will guide the person back to the route.
44 +A person with dementia may become lost in their current surroundings. They might wander off from the predetermined route. Depending on the study group, either the caretaker or WAF will guide the person back to the route.
46 46  
47 -Falling and alerting a caretaker
48 -When a person with dementia gets in trouble when walking around, it is very important that they receive immediate attention.
49 -
50 50  == Measures ==
51 51  
52 52  To measure the effectiveness of our solution, we use a questionnaire. Since people with dementia may experience difficulties with expressing themselves in a conversation, this questionnaire is lead by an interviewer [[(Neerincx et al., to appear)>>]]. A caretaker may also be present to help the person with dementia accurately express themselves.
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53 53  
54 54  == Procedure ==
55 55  
56 -The procedure is that the person with dementia is walking with the Miro. The PwD is given the MiRo and the bracelet/leash, the MiRo has a pre-programmed route to walk. The PwD is asked to walk with the dog. While they are walking the dog, they are observed, preferably by cameras as to simulate the situation how the MiRo should be used. The emotional state of the PwD is actively monitored by looking at facial expressions. Furthermore, the researchers will actively check how easily the PwD interact with the MiRo to check the familiarity. When the PwD is done walking, some small questions will be asked to check the satisfaction, autonomy and familiarity.
52 +The procedure is that the person with dementia is walking with WAF. The PwD is given WAF and the proximity, WAF has a pre-programmed route to walk. The PwD is asked to walk with the dog. While they are walking the dog, they are observed by a separate observer, carefully noting down any remarkable events. The emotional state of the PwD is actively monitored by looking at facial expressions. Furthermore, the researchers will actively check how easily the PwD interact with WAF to check the familiarity. When the PwD is done walking, some small questions will be asked to check the satisfaction, autonomy and familiarity.
57 57  
58 -Functions like when an elderly person falls or when they walk the wrong direction will not forcibly be tested with PwD as this might create a dangerous situation. These functions will be tested in advance with the use of "Dogfeeding". Other people from the development-team will test these functions.
54 +Functions like when an elderly person falls or when they walk in the wrong direction will not forcibly be tested with PwD as this might create a dangerous situation. These functions will be tested in advance with the use of "Dogfeeding". Other people from the development team will test these functions.
59 59  
60 60  == Material ==
61 61  
62 62  The items necessary for the tests are the following
63 63  
64 -* MiRo + bracelet/leash
65 -* Camera to observe
66 -* Caretaker in a nearby room in case of emergency
60 +* A MiRo + bracelet
61 +* Caretaker
67 67  
68 68  = Results =
69 69  
70 -We asked participants about there sense of being in charge, happiness, safety and trust when walking with MiRo and with the caretaker. In the graphs below we show each sense compared between the two guiding agents.
65 +We asked participants about their sense of being in charge, happiness, safety and trust when walking with WAF and with the caretaker. In the graphs below we show each sense compared between the two guiding agents.
71 71  
72 72  {{html}}
73 73  <table width='80%'>
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76 76  <img src="https://xwiki.ewi.tudelft.nl/xwiki/wiki/sce2022group02/download/Test/WebHome/In_charge_graph_comparison.jpg" width="500" height="398">
77 77  </td>
78 78  <td align="left">
79 -<p align="left">This comparison shows that when walking with a caretaker the participants felt mostly in charge, whereas when walking with MiRo the participants felt this less frequently.</p>
74 +<p align="left">This comparison shows that when walking with a caretaker the participants felt mostly in charge, whereas when walking with WAF the participants felt this less frequently.</p>
80 80  </td>
81 81  </tr>
82 82  <tr>
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84 84  <img src="https://xwiki.ewi.tudelft.nl/xwiki/wiki/sce2022group02/download/Test/WebHome/Happy_graph_comparison.jpg" alt="Feeling of being in charge" width="500" height="398" align="left">
85 85  </td>
86 86  <td>
87 -This comparison shows that both a caretaker or MiRo accompanied positive emotions.
82 +This comparison shows that both a caretaker or WAF accompanied positive emotions.
88 88  </td>
89 89  </tr>
90 90  <tr>
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92 92  <img src="https://xwiki.ewi.tudelft.nl/xwiki/wiki/sce2022group02/download/Test/WebHome/Safe_graph_comparison.jpg" alt="Feeling of being in charge" width="500" height="398" align="left">
93 93  </td>
94 94  <td>
95 -This comparison shows a significant difference between walking with a caretaker and MiRo. A caretaker made the participants feel safe most of the time or prevented any unsafe feelings. MiRo conveyed only minimal feelings of safety with participants answering 'at times' most frequently.
90 +This comparison shows a significant difference between walking with a caretaker and WAF. A caretaker made the participants feel safe most of the time or prevented any unsafe feelings. WAF conveyed only minimal feelings of safety with participants answering 'at times' most frequently.
96 96  </td>
97 97  </tr>
98 98  <tr>
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100 100  <img src="https://xwiki.ewi.tudelft.nl/xwiki/wiki/sce2022group02/download/Test/WebHome/Trustworthy_graph_comparison.jpg" alt="Feeling of trust" width="500" height="398" align="left">
101 101  </td>
102 102  <td>
103 -This comparison shows similar results to the safety comparison. A caretaker is reported to be mostly or completely trustworthy, while MiRo is trusted less as participants trusted it 'a little' or 'mostly'.
98 +This comparison shows similar results to the safety comparison. A caretaker is reported to be mostly or completely trustworthy, while WAF is trusted less as participants trusted it 'a little' or 'mostly'.
104 104  </td>
105 105  </tr>
106 106  </table>
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110 110  
111 111  = Discussion =
112 112  
113 -Through this test, we aim to answer the question: "Does walking with the MiRo increase the perceived autonomy of people with dementia, compared to walking under guidance of a caretaker?"
114 -We see that in the current state of our prototype, this is not the case. The caretaker is preferred when asked if the user feels in charge, feels safe, and feels trustworthy. However, we note that the MiRo does slightly outperform the caretaker in regards to happiness. We think that further development is needed to accurately gauge if walking with a MiRo will eventually score equally or better compared to walking with a caretaker.
115 -We see flaws in the limited testing setup that was available to us. With only eight participants, it is nearly impossible to draw conclusions from the experiment. Additionally, these participants were actors and not real people with dementia, which may have caused bias in our results. Finally, while we intended to have the participants walk through a hallway accompanied by MiRo, we only had a meeting room available to conduct the experiment in.
108 +Through this test, we aim to answer the question: "Does walking with the WAF increase the perceived autonomy of people with dementia, compared to walking under guidance of a caretaker?"
109 +We see that in the current state of our prototype, this is not the case. The caretaker is preferred when asked if the user feels in charge, feels safe, and feels trustworthy. However, we note that WAF does slightly outperform the caretaker in regard to happiness. We think that further development is needed to accurately gauge if walking with WAF will eventually score equally or better compared to walking with a caretaker.
110 +We see flaws in the limited testing setup that was available to us. With only eight participants, it is nearly impossible to draw conclusions from the experiment. Additionally, these participants were actors and not real people with dementia, which may have caused bias in our results. Finally, while we intended to have the participants walk through a hallway accompanied by WAF, we only had a meeting room available to conduct the experiment in.
116 116  
117 117  
118 118  
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119 119  ==== Inclusivity ====
120 120  
121 121  In addition to the questionnaire, we conducted a short interview with our participant who is hard-of-hearing. Their study was conducted without them wearing their hearing aids.
122 -We asked them if they thought their experience would differ if they were wearing their hearing aids. Their answer was that the biggest thing was that in a real scenario, the wristband doesn't give you enough information about what to do. It only tells you that you are something wrong. They commented that if they were 83, they would not have enough direction from this, compared to someone who could hear sounds: MiRo could direct them back by barking at the user, for example. However, they mention that if you are severely hearing impaired, there is probably nothing you can do other than vibrating the wristband.
123 -We asked them how we could make it more inclusive. They mention that the robot is small and not very visible, which might cause problems for people with a sight impairment. People who are not familiar with walking dogs would also not naturally keep looking at MiRo. They recommended using a larger robot.
117 +We asked them if they thought their experience would differ if they were wearing their hearing aids. Their answer was that the biggest thing was that in a real scenario, the wristband doesn't give you enough information about what to do. It only tells you that you are something wrong. They commented that if they were 83, they would not have enough direction from this, compared to someone who could hear sounds: WAF could direct them back by barking at the user, for example. However, they mention that if you are severely hearing impaired, there is probably nothing you can do other than vibrating the wristband.
118 +We asked them how we could make it more inclusive. They mention that the robot is small and not very visible, which might cause problems for people with a sight impairment. People who are not familiar with walking dogs would also not naturally keep looking at WAF. They recommended using a larger robot.
124 124  
125 125  
126 126